In August, Ton will be moving to a new
school. After five years in regular schools, our parents' instincts
tell us that it's time to look at other options for our son with autism.
We have finally accepted that, though they are a more
socially-acceptable choice for our family, regular schools are not the best
environment for Ton.
For five years after Ton's diagnosis,
he managed to cope with the demands of two regular schools. Preschool
is generally easy for a high-functioning autistic child. Educational
expectations are low. Social norms are still being learned by most
children. And, let's face it, autistic or not, children are cute and
can get by with just charm.
In his first regular preschool, every school day was highly- structured and predictable. Ton was able to anticipate and self-regulate. |
At seven years old, though, Ton was in
a Montessori classroom with a very low percentage of high-functioning
special children and was no longer coping. Academically, he could
barely go through lessons because of his difficulty to regulate and
to concentrate. His Dev. Ped. actually said that, aside from his
autism, Ton's condition probably had the co-morbidity of Attention
Deficit Hyperactivity Disorder (ADHD).
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In terms of communication, he was still
talking like a four year-old. He still could not converse with most
adults, much less with other children. This caused a huge social gap
with his classmates. Juan, a six-year old boy in his class was told
by Teacher Leah once, “Juan, talk to Ton. I think he wants to play
with you.” Juan just said, “but Teacher, when I talk to him he
doesn't talk back.” So Juan stopped talking to Ton.
Ton would sometimes want to play with his classmates but he didn't know how to tell them. When his classmates tried to talk to him, he wouldn't respond; so they stopped trying. |
Due to his language difficulties, also,
Ton started to become physically aggressive in school. Out of the
blue, he would push children with force. He would intentionally break
items in the classroom to get attention. Then he began to hit his
teachers and other children. First, softly but eventually the blows
became strong enough for the adults to complain to me. (It broke my
heart one day when a little girl in Ton's class said to me, “are
you Ton's mom? Ton is always bad.”)
I worked with the teachers, his
therapists, the Dev Ped and his natural medicine doctor to find
remedies to the negative behaviors that Ton was exhibiting. The
therapists and the Dev Ped were unanimous- the lack of structure in
the Montessori classroom was not helping Ton regulate. The
flexibility of his work schedules caused him to space out and stim
(do repetitive behaviors). The lack of opportunities that “force”
children to socialize (like group activities and structured PE games
and activities, for example) was pushing Ton further into his own
world.
And so, once again, we had to make a
tough decision to pull Ton out of his Montessori school. It was the
same school I (and all my siblings) studied in for preschool and
grade school and the same school that my two neurotypical girls go
to. So pulling Ton out would be breaking tradition. When I finally
pulled him out, we lost the reservation fee for the next school year
and Ton missed the last three weeks of classes. And when I said
goodbye to Ton's excellent, extra-caring and hardworking (to the
extent of deviating from the school's typical Montessori
interpretation) teacher, Leah, there was so much sadness that we both
cried.
With much sadness we say "goodbye and thank you" to Teacher Leah, who worked so hard with Ton (and me) and poured herself into helping Ton get better. |
Ton's new school is primarily a special
school, having been founded by a former learning specialist for one
of the Philippines' top international schools. This specialist worked
for years with special children in the Washington, D.C. public school
system. This is why I was convinced that this was the next step for
Ton after just one visit. There was so much special education
experience among the faculty; but more than that, you could see and
feel their passion for their work. I came out of my school visit with
so much optimism for Ton.
We have to wait and see though. New
beginnings are not always easy. They are exciting, full of hope and
happiness. However, while these fresh starts seem to be full of
promise, they are equally frightening. Our old ways, relationships,
and lives were predictable and, sometimes, even bland. Day in and out
we knew what to do, as if we were on cruise control. We could even
predict the effects of certain precedents and avoid unpleasant
outcomes. They may not have been exciting and ecstatic, but they were
steady and (minus a few minor bumps here and there) smooth-sailing.
I could keep Ton in his old school and
hope. I loved his teacher in Montessori. She was very cooperative and
full of good intentions. I was very comfortable with the staff, from
the head of school to the aides. My relationships with the key people
in the school were so strong that I could come in anytime and request
to observe Ton's class. I could give suggestions and tips that
everyone can use to help him. My friends in the staff would even go
out of their way to check up on Ton, make sure he was okay and
progressing.
Ton could keep on going to a “regular
school.” I would not be shy to tell people the name of the school
because it is not known for its special education program (in fact,
it does not have any). I would be assured daily that there are lots
of substitute “mommies” in the school who would make sure that no
harm falls on my baby boy. I could continue with the family tradition
and wait for Ton to graduate from the old school.
I had wanted all my children to study in the same Montessori school that I went to. (Here are the 3 little ones proudly wearing their school hoodies.) |
But I realize now, that unlike with
relationships or old patterns that we cling on to so strongly, Ton doesn't
have the luxury of time. He cannot spend another school year with us just hoping that this school would finally “work” for him.
Yes, while his every day in Montessori had become “predictable,”
what it really meant was- yes, today, he will hit his teacher again,
refuse to work and break a glass/vase/bowl. That is what
“predictable” meant during the last month he was in Montessori.
It was obvious that it just was not working for our child.
So in June (for summer school), we will
be venturing into the unknown, armed with excitement and new hopes
that this new approach (the special school- something the experts
have been telling me forever but I refused to follow) will be a more
effective, and therefore lasting, way of life for Ton. I pray he will
be happy in his new school and that, finally, we will be on a faster
track of progress towards Ton's independence and, with much hope,
college.
We're looking forward to a bright, beautiful future for Ton. |
I commit to this decision now. As we
start fresh we will bring with us learnings from the past. We will be
smarter and not make the same mistakes. We will strive harder to make
it work. And once we're convinced it is the right fit, we will hold
on as long as it does us good and not let go. Hopefully this is the
final new beginning that will lead us to our happy ending.
Here's to our final new beginning. |