The last two years have had its ups and downs. But whose life has not had ups and downs these last two years? Even my neurotypical (NT) kids have taken me on roller coaster highs and lows themselves!
With Ton, we've had rapid gains that are sometimes erased in a matter of days. We've had plateaus when we start thinking, "he's getting better. We're on our way to typical;" then he suddenly crashes to his 4 year old state. I've shed tears with family, teachers, therapists but we've had equal (maybe even more) amounts of laughter, pride and joy.
What has our journey has taught me, thus far? Celebrate successes, quickly bounce back from defeats but keep hoping and praying because it's not over 'til it's over (= 'til I'm gone). We've learned to accept Ton as he is (even his "monster" moments) and by doing so we slowly see improvements and bask in the small gains he continually makes.
Most importantly, we've realized this- Ton is our special child. He is not like most kids but we would never trade him (his innocence, his purity, the simplicity of his being) for a typical child. Having him in our family, in our lives, has been challenging but our whole family has been blessed by his presence. We are living richer, wiser, and more grateful lives because our special child has taken us on this adventure.
Here's to many more years of learning, crying, celebrating, praying and thanking. Thank you, God, for Ton.
No comments:
Post a Comment